Remains of the Day

IMG_5768.jpg

I start by turning on the water, sliding the handle until it points at 2 o’clock. The water gets hot fast considering the size of the home and the distance the water needs to travel from the heater to the faucet. But your tolerance for heat is less than mine, so I need to find the right temperature balance before the tub fills too much. Otherwise you won’t get in. You’re a purest when it comes to tubs; no bubbles, no salts, no oils – nothing to distract or distort the contact between you and warm surrender.

By the time you’ve washed and rinsed your face, the tub is as full as it’ll allow and you slide the handle back down to 6 o’clock and the water stops. I turn the fan off – nothing to distract or distort the sound between my lips and your ears, your lips and my ears. The talk is light and lazy and neither of us is concerned about any topic or response or specific consequence. We just talk, eye to eye.

You take out your air tubes, drape them around the faucet and slowly adjust yourself backward until you’re on your back and your head goes under the water, seeping into your hair and pores. I’ll admit, it’s unnerving seeing you without your oxygen, even in this context. You keep your eyes closed, as if to now exist in another place, another circumstance. Depending on the day and how comfortable you are to be away from your tubes, you’ll take a second or even a third dunk. Down, pause, up. Down, pause, up. When you’re done dipping your head under, I help you sit up in the tub and will usually squeeze the excess water from the ends of your hair until I swing my legs into the water, setting myself on the tub’s white, porcelain edge.

I’ve learned how much shampoo your hair needs to work up a healthy lather; about two quarter-sized dollops. The suds come easy, working up and out until the shampoo has stiffened its way between every strand. And then my favorite part. I use the movie theater cup – the one I got when I saw Batman vs. Superman while you were at women’s conference – to rinse out the shampoo. The water falls in thick ribbons from the cup and onto your head, sending the white foam down your back, into the clear water. It only takes a few cup-fulls. The conditioner, on the other hand. That’s a six or seven cup job – your hair almost getting darker with each rinse, the water getting milkier. Fill the cup, rinse. Fill the cup, rinse. Fill the cup, rinse.

You have the rest of your routine to follow while I sit and hand you your air at all the learned points. There isn’t much by way of talking at this point. You’re without oxygen most of this time and it’s all you can do to keep your head up. So I wait. And when you’re ready, I’m on standby with the towel which I first hand to you so you can dry your eyes and nose and ears and then plant your oxygen back on your face in preparation for the task of standing and stepping out of the tub. We’ve learned to wrap two towels around you and then have me hug you with both arms and a leg until most of the water is blotted from your skin. I grip the ends of your hair with the towel and draw what loose water lingers, leaving you clean and dry and warm.

And there she is. There’s the woman who had me from the start; who smiles from her toes every time we do this, who stops and, no matter how long it takes, sinks her head into my chest and thanks me until she knows I hear and feel her sincerity. The warm water washes away the tube lines on your cheeks, the crimp left in your hair from the humidifier mask you wear at night, the hours you spend researching housing prices and treatment costs and gluten-free recipes and transplant survival statistics even though we promised we’d stop doing that. It washes away the torture silence can sometimes be.

And here we are. In this wet dance of give and share and pour and smooth, we’re washed and renewed – the lines between our differences melting, our reasons for fighting sinking to the tub floor. The way I drove home in silence when I was too embarrassed by the things I said to look you in the eye; the things I said I’d do but didn’t, the things I said I’d never do but did, the way I didn’t care enough or apologize enough or whatever else enough. The tempered ambition. The dreams on hold. The fear of not knowing. The reality of limited control. The weight of a thousand yesterdays and the complication they bring. The weight of the next thousand tomorrows and the mystery they bring.

The names, the dates, the facts, the anger, the triumph – it’s all there and, at the same time, it’s all washed away. And there’s just us.

Me, keeping you safe. You, keeping me wild.

The Friends You Keep

475904_10151356701661957_245009320_o

Dear Mackenzie,

Before you, my group of friends mainly consisted of inappropriate bus drivers and single-mother cafeteria ladies who find communicative men in this day-and-age fabulously refreshing. Oh, and my mom. (Don’t laugh, you’re the one who married me). But when I met you and slowly began to melt my life into yours, I discovered some pretty amazing people; people who call you on your birthday (who remember your birthday), who come to support you and your family at performances, who give hand-written notes for no real reason, who hook you up with cool perks, and who run to your aide without ever being asked. All in all, your people are pretty dope. As are mine. And the best part about it? Your friends and my friends are now our friends.

That was part of the lure and magic I first saw in you; the immediate and lasting affect you have on everyone you meet. Your goodness is made evident every day in the classmates, co-workers, church friends, former roommates, and perfect strangers who seek you out to both comfort and be comforted. You’re an emotional Mother Teresa to an entire world of people, able and willing to get in the pits with your friends and, without judgement or objective, lift them up with your example and infectious optimism. Don’t believe me? Refer to the list below. They can all vouch for your bomb-tastic-ness. Oh and don’t forget, we have that thing with Alyssa and Gideon on Thursday.

702466_10151810726465715_1140128965_n.jpg
Your mom, sister and I were nearly hospitalized after this blessed event.

Married Friends

Yeah, so I start here because these were the friends we used to resent until we became them. Mostly because we HATED driving to our respective apartments at the end of the night, whereas our married friends would just fall asleep wherever they were and wouldn’t get honor-coded when they woke up without pants. For some reason, those were the biggest advantages of married life to me: no end-of-night commute and no pants.

1291193_10100338202907394_1674845698_o
I’ve met Megan (behind me) twice. Both times she was pregnant. Both times with different babies. Rock on.

Friends With Kids

Yes, I think your son’s tiger-print onesie is adorable. No, I will not check his diaper to confirm whether or not his poop consistency is “iffy”. Not judging here, the closest I’ve come to parenting was that one time I helped a kid who fell into a puddle and then immediately told me to keep my “soft, Turkish hands” to myself. Whoever his parent are, they’re obviously winning people – people we would be friends with.

12122599_10204811618992542_3901227754970329215_n.jpg
Nomad on the left, Crossfit beast on the right

Nomad Friends

Kristen: Hey, what’re you up to?

Me: I’m lost in Ikea and there are no windows. You?

Kristen: I’m at a cafe in Morocco and have a few minutes before my camel gets here.

Me: Swedish meatball, say what?

(actual conversation)

11187168_10207220475299693_6400395796761428941_o.jpg
Don’t let her fool you, Rachel is LOADED.

Rich Friends

Rich Friend: Hey, we’re all going to Aspen this weekend. Come!

Me: I don’t have any skis.

Rich Friend: Uh, buy some!

Me: Dude, I steal toilet paper from the testing center.

(actual conversation)

12107019_10153303065186347_774175997277074843_n.jpg
So much righteousness.

That Friend Who Won’t See Rated R Movies

“There is a moral difference between Braveheart and The Wolf of Wall Street.” This is the kind of conversation I’ll have for two hours with “that friend” before eventually giving up and watching Fern Gully 3. And yes, I know how you feel about rated R movies, but I distinctly remember you watching The Pianist and loving it! Spirit of the law, Kenz. Spirit of the law.

418183_3377573527623_140738365_n.jpg
Mara (next to Jesus in a boat) is having a mild stroke.

That Friend You Call to Go See Rated R Movies

This friend understands the spirit of the law.

10467088_10203615564821621_5374555515503179473_o.jpg
No one hikes on their day off for fun. Except the Sherman’s.

Overly Athletic Friends

Fun and exercise are two different things.

2924_576322280304_7298611_n.jpg
Meanwhile, I’m somewhere buying a bed skirt.

Granola friends

My idea of camping is staying at a hotel that’s a little too close to the airport. Did the cultural generation before me build homes and plow fields with children on their backs? Sure did. Do I want to? Sure don’t! But, I will say, that you have a full gaggle of earthy friends that could be dropped in the middle of the African plains and somehow build a shopping mall. And I respect that. Even more impressive, you have a friend who survived three days of my colorful whining on that trip to Havasupai. Shout out to Willie.

12509392_10102359215100999_3868779763770873286_n.jpg
I resent not being in this picture.

Blue Moon Friends

This is the friend we see every other six months, but when we do meet up we get kicked out of a Chick-fil-a for laughing too hard. And after four hours of eating and crying and laughing and stories told and retold, we’re filled…hopefully enough to last another long absence.

398720_10150461783771608_1939617100_n.jpg
Who’s that chick in the middle?

The “Why Are We Friends?” Friends

There are those friends we’ve had for 10 years but don’t really know what keeps you as friends besides a shared, distinct moment. Like that cafeteria water fight you both started in junior high.You both have different taste in music and movies, you don’t like each other’s “other friends”, and you both have completely different takes on Trump. But that friend was there when I went through that frosted tips phase in 8th grade, when my parents were going through that thing that almost broke them up, when I was lost in college, when I was lost in my first real job, when I was lost in my first serious relationship. Sometimes it’s simply the shared time that keeps us as friends. And throughout that time, they become capsules of the many “you’s” you were before you became “you”. That’s a good enough reason.

The Ride or Die Friends

Life seems to happen in waves. Sometimes they’re soft waves, lapping against your feet at sunset. Other times, they’re cataclysmic waves, uprooting trees and homes and lives. I’ve found that there is a priceless collection of people who are first to the scene of wreckage; despite the second wave sure to come that may take them too, despite the personal price of their rescue, and despite the waves in their own lives. These are the friends who come through, because it’s a short life; full of responsibility and surprises and too little time and too many unknowns. And they know that. And they ride the waves with you. And life is good.

Love, H

To My Wife’s Organ Donor

_E5A6220color

Dear Friend,

The call could come at any time. During dinner, while the clothes are drying, at a Walmart checkout line, 45 minutes into a movie, in the middle of rush hour traffic or in the middle of the night; restlessly sleeping as we’ve now become accustomed. There’s no telling where or how we’ll be, which is an impossible state to find comfort in. But then again, this isn’t a game of comfort or convenience or calculations. I’m sure the events will come as much of a surprise to you and your world as it will to us and ours. For all we know, you’ll also be sitting at the dinner table for Sunday leftovers or folding three loads of laundry or picking up your kids from school or coming home from spring break spent at your in-law’s cabin in Tahoe. The call could come at any time and under any circumstance, bringing us together in a clash of events that will forever hence be our eternal kinship. You’re going to give my wife your lungs and a second life. And all we’ll know of you is that you didn’t see death coming.

I guess I should start by telling you a little bit about Mackenzie. She is the eldest of two gentle brothers and one amazing sister who all love her like the mother she sometimes is to them. She loves the Fall more than most things and is sensitive to foul language. Babies and puppies make her cry, fart jokes make her laugh, and just about any song on the radio will make her sing. Her diet mainly consists of cold cereal and things you put syrup on, but she can bake almost anything from scratch and have it come out perfect. She isn’t perfect herself, mind you, but she’d be the first one to tell you that. She’d also be the first one to laugh at your failed attempt at a joke. She’s kind that way. She’d be the first one to hold your hand and cry with you, the first one to stand up for you to a bully and the first one to look on the bright side of an otherwise dark day. She’s the first to forgive me, the first to forget my failings, and is always the first responder to my many rescues. And she’s the last woman I ever plan to love.

After about a year of progressive breathing problems, Mackenzie was diagnosed with a terminal lung disease (a rare form of pulmonary hypertension) in August of last year. She was 28. We were married only a few weeks, still wearing the tans from our honeymoon. What followed was a whirlwind of appointments, tests, insurance claims, insurance nightmares, unopened medical bills, prayers, pleadings, fights, compromises and tears, lots of tears. And now, barring other “what if’s” still in the works, we’re anticipating this last portion of our pre-transplant journey in our near future; the point where our stories meet.

Yes, some distance in the possibly close future, our worlds will both shake; yours with tragedy, ours with joy. Somewhere you sit, unaware that, while your breaths go uncounted, hers do – waiting for your relief. Somewhere you sit, hopefully among your loved ones, sharing the relative ease that comes with disease-free living. Somewhere you sit, going through your inbox, unaware of this letter being written to you that I so much want you to read but never will. Because by the time we know your name, know your story and meet your family, it’ll be long passed the possibility of meeting you. But rest in peace and rest assured. Your untimely ending is to be our beginning of a wild future.

In the first days following your donation, my wife will be able to take in her first unassisted, deep breath –  something she hasn’t done for a long time now. She’ll be able to sit up, walk, and dress without being tethered to oxygen. I’ll be able to kiss her lips without feeling tubes on her face. And I imagine she’ll feel whole again, human again.

In the year following, we’ll be able to settle into a life of somewhat normalcy. Maybe we’ll both decide to go to grad school or buy a home or finally take that cliché backpacking trip through Europe. Also in that year following, we anticipate opening the possibility of becoming parents. Exactly what that discussion will be like and what options it will afford us, I don’t know. But it’s an eventuality I’ll fight long and hard for, knowing how deserving Mackenzie is of being a mother, how instinctual her devotion is. And knowing how fiercely single-minded she will be in her love for our children.

In the five or ten or twenty years following, there will be mortgages and dance recitals, root canals and senior proms, flooded basements and maybe even marriage counseling, which I’ll be resistant to at first but later thankful for (because it’ll most likely be my fault anyway). There will be skinned knees, watercolor paintings on refrigerator doors, Christmas Eve traditions, children going off to studies abroad and an altogether full life of intense beauty and complication that will awe us and simultaneously tempt us away from the things that matter most.

And in the thirty  or more years following, when I’ve finally come to terms with my gray hair and love handles, I’ll take Mackenzie’s hand in mine for perhaps the millionth time and, in the silence between us, I’ll hear her breaths pumping through your lungs. And that’s where you’ll always remain, a part of her and a part of us and a part of our children and our families and friends beyond that. Because you will have given my wife what they or I could never give her. I would give her my hands, for she would perform better work with them than I, touch and comfort more lives. I would give her my heart to keep her precious blood flowing in and out of her able limbs, for she would do better with it than I, go farther and serve more. I would give her my own lungs to prolong the sweet words she shares; words without envy, without guile, without pretense or self-purpose. For as hard as I try to speak of things higher and beyond myself, she would form better words with my air than I. Nevertheless, only you, somewhere living and working and breathing, can fulfill what love alone cannot.

And yet, even after all that; after the years and careers and grandchildren and on and on, we too will expire from this world, hopefully leaving behind a legacy as reaching as yours. And when all else is gone, the root of your gift will still ring. Because the things that outlive our bodies are our choices, our love, kindness, charity, and the memories left to our loved ones who will live on and on in our absence. Whoever you are and whatever you’ve been through, we don’t hope for your death any more than I’m sure you don’t hope for hers. But death isn’t the point, is it?

Even if death takes Mackenzie too soon, as it will have already taken you and eventually me, there’s that bit that remains, that ensures all is well. That portion where love and kindness and charity springs, which makes laughter sweet to hear and life too insatiable to merely spectate. That space that will still exist, even after death has made its wash of us; after time and experience has scraped hollow the rest and planted itself triumphant. There will still be that glint of light to carry on the spirit of life brought from death. The leaves that turn from green to gold and gold to brown and, in time, fall to feed the earth; another season and another bloom promised. And on and on and on.

Love, Henry

So, lung transplants ain’t cheap. Click above to send Mackenzie some love, if you’d like.

A Tale of Two Cities

img_5273-1

Dear Mackenzie,

Well, it only took 12 hours, 3 movies, half an audiobook, two greasy bags of Jack in the Box and a partridge in a pear tree to get us from across the desert to the city by the bay. And barring an unfortunate incident in a Reno men’s room, we made it in one sane piece.

Due to bizarre recent events, San Fran has come a-callin’ as a potential home for us and your future lungs. Yes, fate has been having a blast with us! And now we’re faced with two centers to decide between for your lung transplant. BUT, we don’t have to decide anything this second (although, it’s getting to be about that time now). And as long as we’re in town checking out UCSF’s bomb-tastic program, we might as well squeeze in some time for food and laughs. There’s always time for food and laughs.

Here’s a little pic tour of our events, so far (since I’m never NOT taking pictures, it’s the Asian tourist in me):

“They can take our land (or lungs), but they’ll never take our FREEDOM (or blush)!!!”

If I’ve learned anything after five years, it’s that your version of 15 mins is code for 60 and that 30 mins means “I’ll be done when I’m done, so go turn on my curling iron and eat some Cheetos until then!”

Breakfast of champs

 

No, you’re not taller than me. It’s the angles…

This is us in front of the sweet digs Kevin landed. Is there an artisan kitchen? Yes. Ample closet space? Also yes. Is there a window looking directly onto whoever’s sitting on the toilet? You betcha.

You’re pretty.

I may have started to tear up when I stepped off the elevator and saw the AMAZING view of the city.

Not sure who homeboy on the left is…

Carter wins the award for “successfully guarding all of our purses, including mine.” Such valor.

Don’t adjust your screen. That is the actual size of my head.

Had a lot of time to kill (when we  weren’t eating out of Panda Express containers like a bunch of zombie raccoons), so we took more selfies than is socially acceptable.

Turn your head…and cough.

This is us watching an informational video on the process of lung transplantation. And yes, Meryl Streep was fantastic in it!

The real-life Meredith Grey

I’m starting the Kerry Kumar fan club, transplant coordinator extraordinaire. Just don’t ask her for good places to eat.

My Carter’s cooler than your Carter

Jen: Where do you wanna go, Carter?

Carter: the art museum

Everyone: …

Carter: What?

So, we went to the art museum because we’re those kind of people. And because Carter has the best ideas. And because they had an Oscar de la Renta exhibit. And because I’m proud to know who that is.

The Fault in Our Stars 2: Wheels of Wrath

I forget what we look like in pictures together… Turns out, it looks a bit like I’m a WWE wrestler choking you from behind.

She named him Winslow

A silence fell over the table when these bad boys came. Let’s just say, I heard heavenly harps playing as I ripped into those crabs legs. Did I later find butter behind my ears? I don’t wanna talk about it.

And now here we are…

There’ll be more rounds of testing, more awesome doctors to meet and so many more things to be eaten and later regretted. But until then, life’s a dance!

 

So does a whole world, with all its greatnesses and littlenesses, lie in a twinkling star. And as mere human knowledge can split a ray of light and analyse the manner of its composition, so, sublimer intelligences may read in the feeble shining of this earth of ours, every thought and act, every vice and virtue, of every responsible creature on it.

Charles Dickens, A Tale of Two Cities

Love, H

While You Were Sleeping

11703565_10154090075925715_6518977380313984882_o
Photography courtesy of the amazing Kimbry Studios.

Dear Mackenzie,

You’re sleeping right now; the sounds of the air purifier and your heated breathing machine filling the otherwise silent morning air. Nothing else seems to exist when you’re asleep. Nothing but quiet — a brief respite from the clang of reality. Like I’m a mile underwater, looking up without the mildest indication of the hurricane that boils on the ocean surface. Between the tanks and the tubes and the chargers and distilled water and O2 regulators and blood oximeters and pills and appointments and disappointments, it’s easy to forget the peace that silently flows beneath and above it all, sometimes cruelly out of reach. And for a time that won’t last long enough, here is peace: you, with your hand on my forearm, softly sleeping through the ticking of my keyboard.

Sleep on, my love; remembering the sleepless nights behind us and the ones we’ve yet to share, knowing you can reach out, at any point of any night, and find me there. I’ve already passed the crossroad in my life of weighing the two worlds before me; life with you and life without you. You’re my path, not so much by choice, but as a matter of survival. For the love you’ve built around me is a house only you can haunt.

Sleep on, my love; keeping at bay our unvoiced wish to banish these dark days, rather than welcome their refinement. For sadness, like rage or diffidence, is just another way to love each other, providing deeper shades to paint with.

Sleep on, my love; forgetting the fear, the injustice, the stains these moments are leaving. Because I can’t imagine a life that is walked with offense producing anything but. Because this thing in our life is an opportunity that too many have let rot. And we can’t do that, because someone else, maybe not too far off, will go through this too and will want to know the why’s and the how’s and the what now’s that we’re only starting to answer for ourselves. We should forget whatever we feel this world or its people may owe us, because resentment is a backyard bone best left buried, and a sense of what’s owed is perhaps merely runoff from a lack of giving.

Sleep on, my love, and don’t fear waking. There are more than just hurricanes on this side of it all. There are answers slowly forming, lives your story is touching, hope you’re helping grow in the world around you. There are trips to the beach to be had and half-read books to someday finish, recipes waiting to be perfected and lazy Wednesday afternoons longing to be spent wandering the endless aisles of Target. There are more good times ahead. There are more bad times too. But there’s an armor I see forming around you, a chainmail of all the hundreds of times your heart broke and forged back together, only to be found running toward the next fight. You’re the strength from which I draw, for relief and for courage (how dare I be so afraid, when you’re so strong?). And it all waits for you, as you warmly sleep; the wars and peacetime of our inevitable landscape. But for now…

…sleep on, my love.

I’ll keep watch.

I’ll keep time.

I’ll keep it all,

Until you wake.

Love, H