A Short List


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Nothing big going on over here. Just a short list of a few things about nothing really:

  1. I’m up to 750 mg of Cellcept. It’s week 3 of my 6 week stint. Blood tests this weekend, then I go up to a 1000 mg the week after the next. I have yet to determine if the medicinal benefits are just in my head?…or my oxygen needs are, in fact, going down. I like to think they are. Time will tell…or rather more pulmonary function tests (PFT’s) and a 6 minute walk test will tell. Fingers crossed that this stuff actually works!
  2. In other medical news…I had a wart frozen off my pinky finger that’s been bugging me for months. So…go me! (Henry calls this sexy talk).

  1. I’ve survived a week and a half of my “diet”/eat-healthier-so-your-body-can-heal-and-isn’t-inflammed-all-the-time lifestyle change. STILL GOING STRONG! Thank you all for your love and support! It’s true what they say…the first week is the HARDEST. I eat each protein packed meal like Daryl Hannah eats that Lobster in Splash. But I’m managing my meals and mood swings (sort of). Henry asked me earnestly the other day, “Can we just go one day where you don’t complain about something.” Slice of humble pie, coming right up. Mmmmm…pie.
  2. I’m growing out my pixie cut. Yup. I mean, I love it, but I have legit ADD when it comes to my hurrr. Right now, it’s starting to look more and more like those babies born with too much of it (as seen here). Nothing a crap-load of Henry’s jungle hair cement can’t tame (which I borrow on a daily basis). Also, I started taking Biotin to grow my hair out faster, but I’m quickly learning that my mustache is also very much on board. Here’s to couple’s face shaves! #marriedlife
  3. Henry and I got into a HUGE fight about…potatoes. Add that one to the books. #marriedlife
  4. I have completed two weeks of Pulmonary Rehab. I’m the youngest one in the class and the only one on oxygen. I haven’t asked the others what they’re in for, but I’m sure once we get to know each other better, all the secrets will be coming out. I adore Reba. She wears a different Mickey Mouse t-shirt every class and helps her 90-year-old friend go grocery shopping (even though she can barely breathe herself). Glenn was a high-rise window washer for 50 years. He chuckled as he recalled to me how he used to scare the secretaries in the buildings by dropping his coat in such a way that made them think he was falling. Little devil. Betty only works out in her best “I just retired and moved to Miami” silk lounge wear. Florian was a literature teacher and loves to teach the teacher how to teach the lectures. Margaret leads the class, a Texan born and raised, she talks fast and gave me garden grown tomatoes after my last session. She cracks the whip on all of us and loves to bump up my treadmill speed every couple of minutes. My heart, and lungs, thank her.
  5. I spent the weekend with my family in Lake Tahoe. You can’t beat puzzles, conference and quality family time…the trifecta of beautiful Fall weekends. Plus it gave me an excuse to wear that Costco pajama set I love for 3 days straight. And Lake Tahoe…are you kidding me?! Bluer than your brown eyes after a colonoscopy. If it weren’t for the insane traffic to and from, and the altitude (6500 ft…yikes), I’d make Henry go with me every weekend.
  6. I’ve been looking at homes nonstop the past couple days. Why am I a crazy person? I am in no way, shape, or form anywhere near owning a home. I guess I just love to visit that space and time ahead where life and plans go on as normal and I get to pick out cupboard colors and install terra-cotta floors and kids are running around and Christmas lights are on the roof. Henry’s downstairs now and I can sense him rolling his eyes. I know, Henry, home is wherever you are.
  7. I’m learning that some pant shapes work with my body, and others don’t. In other words, I’m burning all my pants. It’s too bad pant shopping involves putting on pants.
  8. Sometimes, my meds make me super restless and I wake up at 5:30am and I start having full-fledged conversations with Henry about the meaning of life and his thoughts on cropped jeans and whether he remembers the name of that one guy we ran into that one time…But he never complains. I ask Him, “Do you love me?” He replies in a half grunt, half sigh, “uh-huh.” “Are you happy?” “Uh-huh.” One time, I tried throwing him a curve ball and asked, “Do you hate me?” “Uh-huh.” And then he proceeded to continue snoring. I’m convinced a man’s true character comes out when he’s in stage 4 REM sleep. He just humors me every time and pulls my head into his chest and wraps his legs in-between mine. We may not agree on potatoes…but we agree on the fact that we love each other to the bone. He’s my air. The only air I need.
2 Responses
  • Tiffani
    October 7, 2016

    You are so clever, honest, snd candid and I love your writing. Can’t wait to hear test results of this drug. You guys are in my prayers!

  • Veronika
    October 12, 2016

    Hope your tests results will be great! Keep up the good jon on your diet – it will pay off I’m sure.
    There is nothing wrong with planning a new home, in the opposit I believe it helps you achieve your goal.Lots of good wishes!

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